Validation and Interpretation of Neurological Registry Data
نویسندگان
چکیده
منابع مشابه
Validation and interpretation of neurological registry data.
RELEVANT LITERATURE Methods of Validation Several methods can be used to assess completeness of registry data. Completeness of registration can serve as an indicator of registry effectiveness an ideal registry will capture all cases of a given disease within a defined population. Completeness is defined as the proportion of diagnosed cases that are registered. Possible methods for estimating co...
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issues related to data collection and registry configuration. When designing a disease registry, it is important to consider the registry’s purpose and target population as this will influence the type of data, source(s) of data, and the manner in which it is collected. A data dictionary defining the specific data elements to be collected is key to ensuring registry data quality. Compliance of ...
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This section of the guideline discusses considerations when planning and designing a registry that will require linkage to administrative data. Administrative data may include hospitalization and surgical or other procedure data; physician billing data; vital statistics data (e.g. births, deaths); prescription and other pharmacy data; long-term care services and admissions; and other data colle...
متن کاملNeurological registry feasibility and sustainability.
RELEVANT LITERATURE Factors That Negatively Affect Feasibility Several factors can negatively influence registry feasibility. They include confidentiality and privacy issues, barriers to participation, issues related to multiple centres and locations, issues related to human and financial resources, poor data quality(non-uniform, missing, or incomplete data), and potential biases. In the past, ...
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ژورنال
عنوان ژورنال: Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques
سال: 2013
ISSN: 0317-1671,2057-0155
DOI: 10.1017/s0317167100017182